''Like he had no skin''

Stephanie Smith, 35, has a young  son named Isaiah. When the little boy was  born, she couldn't have been happier. But then she noticed  something strange on her newborn's skin, and the tiny baby's life soon  became  a nightmare.

A red rash broke out on Isaiah's skin when he was only three months old. Every time he was exposed to perfume or other intense smells, the rash worsened. It got so bad that Isaiah's skin would rupture, bleed, and leak discharge.

Isaiah Quinn Blog

According to his doctors,  Isaiah had a bad case of eczema, so they prescribed him a topical steroid ointment. The rashes began to recede at first, but then a new nightmare emerged as  Isaiah's entire body turned red and the rashes returned—even worse than they had been. The little one then needed more ointment to tame the severe lesions. And  the cycle continued.

Isaiah Quinn Blog

Once again, the rash receded slightly but then returned even worse. Doctors could not believe the reaction. His hair began to fall out and he was barely responsive.

Isaiah Quinn Blog

''The doctors said it was just eczema,'' his mother Stephanie said. ''Many doctors came in and out of our room. We saw a GI doctor who told me I was poisoning my son with my breastmilk and I needed to stop immediately.''

After five months, Isaiah was struck by an especially extreme outbreak and his skin began to burst open. He was brought to the hospital and treated heavily with steroids. His skin returned to normal again but after two days the outbreak flared up again. The little boy would scream incessantly.

Isaiah Quinn Blog

To help Isaiah, Stephanie began to avoid contact with others  to decrease the risk of infection. She wrapped Isaiah in medical bandages and applied layer after layer of topical ointment. Even his hands had to  be wrapped up so that he couldn't  scratch himself while sleeping.

Isaiah only felt better when  immersed in water, so  Stephanie spent hours sitting next to him while he rested in the sink. It  was the only place where Isaiah didn't cry.