No regrets


Simon Moore comes from Norfolk, England  and has had to cope with  bullying since his childhood, which he mostly spent behind closed doors. Even today, as soon as he goes out on the streets, people whisper, point at him, and secretly photograph him. Simon was born with Treacher Collins Syndrome, a genetic disorder causes the facial deformities, including  missing ears or cheekbones. Five years ago, the deaf 30-year-old met Vicky during sign language classes. The mother of three was not bothered by Simon's unusual  facial features and fell in love with the gentle-natured man. Two years later,  they  got married.

Facebook/Simon Moore

To complete their happiness, all that was missing was a child. But Vicky had had her tubes tied  after giving birth to  three children  from her previous marriage. They calculated that it would cost over $10,000 for artificial insemination. But, there was a 50% chance that the baby would  inherit the disorder. ''The disorder could manifest itself in many small ways, such as with a hearing disorder,'' 36-year-old Vicky explained. ''Or the baby could have been born without a face at all. But we weren't concerned about whether the baby would be born with the disorder or not. Simon is a ‘classic case' and he is wonderful.''

Facebook/Vicky Moore

Following successful IVF treatment, baby Alice was born in February 2014. Vicky remembered how she held the girl for the first time in her arms: ''She was the spitting image of her father.'' Alice also has Treacher Collins Syndrome, but  in a milder form. She has a cleft palate, malformed ears and needs a hearing aid.

Facebook/Vicky Moore

Despite her condition,  Alice is growing up to be a cheerful and chipper little girl. As might be expected,  when the family is out in public, they receive a lot of  curious looks. But sometimes the behavior they encounter is much more hurtful. ''My neighbors even said we were 'cruel' because we made her,'' Vicky said. ''Another kid looked at her and called her an ugly pig.''



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